Saturday, August 30, 2008
Jesus Wants Smarty for a Sunbeam
And without coaching he said the following monster sentence, "When I eight, I want be baptized, just like Jesus." That's like a million words long! (okay, so it's like 9 or10.) But it's a huge accomplishment for Smarty! I never would have believed we'd come this far if you'd have predicted this a year ago! Well done, kiddo!
Let Me Explain About the Previous Post
Friday, August 29, 2008
Duo of Devils
Friday's Feast
For once I don't have much to say off the top of my head, so here's a little 'food for thought.' (Stop groaning and read)
Appetizer
Name 2 blue things.
A perfect sky
My beloved Camry
Soup
What is your favorite color of ink to write with?
Purple. I love all things purple when it comes to office supplies.
Salad
Pretend you are about to get a new pet. Which animal would you pick, and what would you name it?
I love dogs! I adore how loving they generally are. They’re great for kids. They can live happily outdoors. (all my boys have allergies) And they make great body guards/ running partners, so I could run wherever, whenever.
(As for names, you can't pick a name until you've met the dog!)
Main Course
Write a sentence with only 5 words, but all of the words have to start with the first letter of your first name.
Living loose leaves lots less loot! (right; more than 5, but I couldn’t resist)
Dessert
If you could live on another continent for 1 year, which one would you choose?
Europe, Europe,
Thursday, August 28, 2008
More Firsts!
Smarty kissed me on my cheek today! Like a real kiss! Not a zzrbrt, not a slobber, not a lick. He's finally got it figured out. What a payday for me!
I was gonna stick some cute pics on, but I can't get them to load. I may give it another shot in the morn.
Tuesday, August 26, 2008
Sweety's Answer
Her son has the same issues, and she pointed us in the right direction.(This is what Wiki says IGF1 looks like)
I'm really new to this, so feel free to jump in and correct me if you know better. As I understand it, one's growth hormone mixes in the liver with IGF (insulin-like growth factor) and a binding protein, and that produces growth. Similar to the whole insulin process.
(This is what Answer says IGF1 looks like)Sweety had extrordinarily low levels of binding protein and his IGF1 was immeasurable. Isn't that great?! j/k. It's not great, but I'm so glad to know what the problem is!
It's also heartening that my cousin's son has responded very well to treatment, and having multiple cases in the same family has attracted the attention of our endocrinologist and may help to move things along more quickly for us. So I'm very hopeful that we can help Sweety out. Woo-hoo!!
For more info about Sweety's history click on the Growth Hormone Deficiency lable under index to the right. For more info about IGF and binding protein, click on the links under research to the right.
Sunday, August 24, 2008
Ben the Diva
The other thing you need to know is that Smarty has been having us roll-play various cartoon and movie characters for like the last two weeks. His current favorite for Ben is a French salt shaker with a gravely voice, from Blues Clues named Mr. Salt. Just imagine how tiresome it is to play this character!
So yesterday Ben half woke-up and stumbled out to our lunch table, and Smarty began calling for Mr. Salt. Poor Ben just couldn't face it, so I told him to come up with a character he could handle. He decided Shrek, an ogre, wouldn't be too much of a stretch, but he wanted to run it by me first. So he tried to spell it, but it didn't quite come across:

Ben: I can't handle Mr. Salt today.
Me: Who do you feel like being right now?
Ben: uh.....(big pause while he tries to awaken his brain) How about......... (trying to remember how to spell Shrek) how about:
C.... H..... E.... R.
Me: ?!!!
(totally confused and just generally dumb-founded)
At this point Ben realized he'd made a mistake somewhere, but he couldn't quite figure out where. He was getting farely annoyed that I couldn't figure out what he was saying either. He decided to add a K to the end, which didn't help me much. But it was a good laugh.
So the next time you see Ben, ask him how he's getting along without Sonny, and be sure to request a rendition of your favorite song.
Hmmm....Something's Not Quite Right
Saturday, August 23, 2008
Our Ten Year High School Reunion
Sorry, this post is overdue. Our reunion was actually on the 9th and 10th, but it was great! A lot more fun then I thought it would be actually. I was glad to see for myself that most people made it out of high school and matriculated into the adult world with success. It was humorous to see that there were a few people that didn't! It was great to catch up with people I haven't talked to in 10 years, but it was also fun to get to know people I didn't really know in high school too. There were even a few people that I sat down and chatted with, that I probably only exchanged 5 or 6 words with in all of high school.Ben and I graduated in the same class, so we have much of
that experience in common. But while we were good friends, we didn't run in the very same circle, and we didn't start dating until the last week of school. So it's fun for me to run into people and enjoy their inevitable surprise that we got married.
Wednesday, August 20, 2008
Small Victories

More fantastic news:
Smarty ate a green bean today! Can you imagine?
He totally hated it, but he kept it down. He didn't even gag!
Grandma Reeder got him to do it (of course it wouldn't be me!) while I was out of the room (of course, of course!)
But we celebrated big-time none-the-less! What a huge victory for us! Here's hoping that wasn't the last green bean Smarty will ever eat!Congrats boys. We love you, and we're so proud of you! Keep up the great work!!
Tuesday, August 19, 2008
Smarty's First Hospital Stay
About June, 2006, a mysterious illness seemed to be slowly draining the life force out of our precious baby. Over a period of 2 or 3 weeks, Smarty grew more and more lifeless and less and less interested in food or drink of any kind. We went back and forth between the doctor and the hospital lab for tests, but we just couldn't figure out what was wrong.
I'll never forget that first round of testing. The first time I had to allow someone to inflict pain upon my non understanding child. It was horrid! (Smarty didn't like it much either!) Is there anything more difficult? I found it hard to recover; I was pretty rattled.
After it was over, I obviously should have waited to leave until I could focus properly, but I didn't. I crashed the truck into a bollard in the parking lot. Ben was pretty pleased about that. Now we have a lovely curved indentation just above the right front tire. Trust me, it doesn't really improve the look of the truck at all.

Just like Sweety, Smarty was a challenge to stick too. Not that he had difficult veins or anything, he was just insanely strong! They had to strap him to the backboard and then 3 people held his limb down while a 4th person fished and fished under his skin. Even then, he knew just the right moment to jerk and cause problems.
At any rate, eventually Smarty got sick enough that he was hospitalized. We were there for a week without a clue or a lead. The doctors and nurses all had to wear special gowns and masks and gloves when they came in to see us for fear of catching or spreading whatever the heck it was. They tested him for all kinds of scary stuff, Celiac disease, Cystic Fibrosis, and lots of other intimidating things, but no dice.
Our pediatrician, her colleague, and the resident pediatrician were great brain stormers. They worked really hard. Eventually a googling session led our pediatrician to an unlikely little condition, but she threw it in with the next round of tests anyway, and it ended up being our answer.
What was the culprit? A zinc deficiency! Apparently large amounts of antibiotics, (used to treat his dozens of ear infections) coupled with Smarty's vegetarian lifestyle, will do that. The best part is it's a condition easily cured with the administration of vitamins and Pediasure. ( Ah Pediasure... we think it smells like horse vomit, but luckily Smarty just loves it)
After all of the terrifying things that Smarty was tested for, this seems so silly! I remember trying to prepare myself for all of the uncomfortable adjustments I knew I was going to have to make and for the possibility that Smarty could die by age thirty. And really all I have to do is pop him a couple of vitamins and some foul smelling health drink! And he's fine. Thank heaven for an easy fix! I have counted my blessings every day since.
Saturday, August 16, 2008
Sweety's First Hospital Stay

We've had quite a bit of illness at our house in the last month or so, a bad cold and cough followed by the stomach flu. Smarty and I did okay, and Ben managed to miss both rounds, but Sweety's had quite a battle.
He was through the worst of it last weekend, but on Monday I took him to the doctor, because he was still lethargic and not eating or drinking much. His blood sugar was way down, he was dehydrated, and he'd lost a pound and a half. You can imagine what a difference a pound and a half makes on a 14 or 15 pound body!
The unbelievably great part is that somewhere in the midst of his struggle, Sweety grew an inch! Doubling his growth since October! Dr. Clawson said to me, "How is that possible?!"
All I could say was, "I don't know; you're the doctor!"I am THRILLED! I'm so grateful that his ability to grow hasn't completely shut off all together. I was beginning to wonder. I think this is very good news for the future.
But back to the story: So Dr. Clawson sent us to the hospital to 'pump him back up,' and I braced myself for the inevitable IV stick. (Several of you have mentioned to me about your children getting IVs and blood work done. I know I'm not alone in the misery of this experience!)
We've been with Sweety to the hospital for blood work and to the ER for dehydration before, and after several people poked and fished and fished and fished, they eventually had to give up both times. They got the blood work that time by pricking fingers and squeezing it out, and in the ER we re-hydrated Sweety with a syringe and some Pedia-lyte.
True to form, Sweety was a challenge. One by one Sweety took down the best of the best, wounding egos and ruining 3 unblemished records. After 5 people and a dozen or so tries, the Peds. dept. manager, who happened to be my former bishop, came in and saved the day! When I saw his face, I knew he was praying just like me, and I knew he would be successful.
Once they were able to get liquid in him, Sweety perked right up and turned things around. 28-ish hours later, we were packed up to leave when the lab called and said they needed more blood! AAAAAHHHHHHHH! I'd thought we were done!
They decided to do a finger prick, rather than try to poke him anymore, but I think I'd just had it by then. I was tired, (you know what it's like to try and sleep at the hospital!) the room was warm, and Sweety's blood was all over the place, everywhere, but in the little tube. So I sat uselessly in a corner and sipped my stupid orange juice while they tortured my baby.
To Sweety's credit, he really toughed that one out. He held very still and just whimpered. No more panicking and screaming.
He's doing really well now. He's eating well and gaining strength each day. In fact he's already back up half a pound. :)
After dogging on the whole hospital experience, I must say that I'm so thankful that we have hospitals when we need them. I'm glad that they were able to fix Sweety so quickly and get him on the track to recovery. Hopefully it will be some time before we need to return!
Grandma R's Super-Surprise
I had a super surprise last Tuesday. It was a bright spot on a day of concern. Sweety was dehydrated and had to go to the hospital. I had talked to your mommy and we had decided that it would help if you came to stay with me for a couple of hours. Your mommy and I hung up the phone and I went about my day.
About 3 minutes later the phone rang again. When I answered, I heard a cute voice say, "I coming." I told you how happy I was about that. We talked a little and you were ready to hang up. I said "Good-bye" expecting your mom to come on the phone, but the phone call ended. She told me she had walked in as you were saying good-bye and thought that it really sounded like you had been talking to someone.
So I received the very first phone call that you started. What a precious gift you gave me. Especially because you wanted to let me know you were coming. I love you. (We still don't know what you pushed to call me.)
Thursday, August 14, 2008
Sensitive Smarty
Case in point:
The other day we were in the car, waiting in a parking lot, listening to the radio. Completely out of the blue, Smarty began to cry. Uncontrollably. He sobbed and sobbed! I could not make out what caused this pain in my poor little boy.
I got him out of his seat and held in my arms while he cried. After several minutes he calmed down enough to speak. I found out that Smarty was picking up on the mood of the song that was playing! (Evenessence, My Immortal. Which actually is a very sad song) A song made my son cry like his heart had was ripping out of his chest!
On one hand, I'm so grateful to be raising up men that will likely be very compassionate husbands and fathers. On the other hand, I am afraid of what school, and peers, and the world at large will do to my guys. I hope we can find good coping strategies!
Smarty, the Champion Trike Rider!
Watch out Lance Armstrong, Smarty's comin'! I just wanted to let you all know that Smarty has officially mastered the art of trike riding! We've been working at it since Christmas-ish, not hard or anything, but today it appears that the concept has officially solidified! Way to go kid!
(Above: Smarty's got some strong muscles!)
(To the right: He's showing me how big he is now that he can ride a trike.)
As far as potty training goes, he was doing great until we went on vacation, but it was too uncomfortable for him do it somewhere other than home. He hasn't wanted to do it since we got home either, and I won't push the issue.
I really am okay with it though. It's a relief to know that he has the mechanics nailed down. I think that was my biggest concern. Now I'll just wait patiently until he's good and ready to go again.
I Thought I was Going to Loose Him...
Tonight I'll start with what may have been the single scariest moment of my life:
We'd been at the Flake ranch in Arizona for 3 or 4 days. On Friday everyone went off on a hike. Sweety and I stayed behind, (Alone. Without a vehicle. 30 miles from the nearest tiny, little town) because we'd been hit with a truly brutal summer cold. I was looking forward to a good long soak, and a nap. But instead, Sweety and I bonded in a most terrifying way. Bleghh!
Not long after everyone left, I chatted with Sweety while he cruised the couch, and I was thinking it was time to get his blanket and lay him down for a nap. As these thoughts passed through my brain, Sweety fell and started to cry. No big deal, right?
As I reached to pick him up he began just sucking air, his little back was arched, his eyes had crossed and rolled up into his head, and then he quit breathing! Apparently his forehead landed directly on a lincoln log, and a nice bruise was already forming. After what seamed like YEARS he sucked in a couple of breaths. I waited for him to stabilize, but he started the whole freaky business all over again! This time he seized a little too! I was panicked!! I mean hyperventilating, shaking, freaking, panicked!!! (Is anyone surprised?)
I have had CPR and rescue breathing training. I've renewed recently in fact, but at that moment my brain was far too scrambled to make sense of the various steps that were running around and around in my head. One concern dominated my thoughts: if Sweety didn't begin to breathe on his own, how could anyone reach me in time to help!
I ran to call 911. (there had been some talk about getting rid of the ranch phone to save money; thank heaven we hadn't done it yet!) A little aside here: We've all heard those 911 calls where someone is just shouting pathetically into the phone, and you're just begging them to snap out of it, calm down, and relay some useful information.
Well I have total empathy now. That was me on the phone with the operator. She's attempting to verify my address, but the only words that would come out of my mouth were, "My baby's not BREATHING! MY BABY'S NOT BREATHING!" Thanks to God, while the operator was working with me, Sweety began to breathe again.
After some time passed Sweety stabilized. I decided to try and get him to the paramedics myself in order to avoid the back-breaking expense of having them come all the way out to us. However I faced a new problem. I needed to contact someone to come back and get us, but the ranch phone doesn't have long distance and cell-phones are awfully sketchy out there.
So I prayed. I explained the situation to Heavenly Father and begged for my phone to get reception. After that I absolutely knew where I needed to be to make my call. With Sweety still in my arms I walked outside to the crest of a hill just in front of the main cabin.
I had a whopping 4 bars. Seriously. Then the words came to my head, "Call Dave." I found out later that everyone else had turned their phones off. Dave was the only one with a phone I could reach at the time. I'm sure I would have tried him eventually, but I think my first choices would have been to call my parents and the people traveling in their car. This impression may have only saved 10 minutes or so, but we needed all the minutes we could gather. I was terribly afraid that Sweety was going to laps into another horrifying episode or something any second.
Dave was just on the other side of Heber, (the tiny, little town, next to the nearest tiny, little town) and started back as fast as he could. He offered to send his passengers with someone else but bless their hearts, they demanded that Dave head for us without further delay. I spent some time putting together a diaper bag for a possible hospital stay, and rounding up Sweety's car seat. (Thanks heaven my parents had taken it out of their van before they left!) After that Sweety started trying to fall asleep. It was all I could do to keep him awake while I waited.
Eventually I heard a truck motor. I started to get excited, but after checking the clock, I knew there was no way it could possibly be Dave yet. I resigned myself to more waiting, when Dave pulled up! Russ and Amanda hopped out, freeing up space for the car seat, consequently giving up their chance at action for the day, and Dave and Jaime rushed us to the paramedics in Overgaard. (the nearest tiny, little town) Keeping Sweety awake proved to be a challenge, but we made it.
Dave said he happened to glance at a clock at the fire station, and the estimate is that he made that whole trip in about half the time it would normally take. (Thank you, police, for not being out and about right then! Although come to think, they may have proved helpful in this particular situation.)
The paramedics put us in the ambulance and asked questions, and poked, and prodded, and asked more questions, and checked, and listened, and asked more questions, and tapped, and patted, and asked more questions until I was having trouble remembering my own name!
They kept 'double checking' my story by adding little twists and changes and asking if they had it right. At the time I was thinking, "Man! You guys must be special-ed. or something, because I just told you that completely different!" But looking back I wonder if they were trying to trip me up or find a hole in case I was lying to cover something up.
After the scrutiny concluded, they determined that Sweety was in no immediate danger, but he did need to be seen by a doctor. We went to the only clinic around, where the only p.a./ doctor was on vacation. So we took off for ShowLo, (a less tiny town, might even be a city) thirty or forty minutes away.
The clinic there checked us in, ran us through triage, and put us in a room. The doctor took one look at Sweety, announced they didn't have the facilities to deal with head injuries, and sent us to the emergency room. (When the paramedics in Overgaard had mentioned it, I was surprised to hear there was an ER!)
Ah, yes. The ShowLo ER. An entire blog post all its own. But here's the crux: I have developed a great appreciation for the comfort and familiarity of the ER here by my home! I'm sure it didn't help that at the time I was miserably sick, but come on! It took 3 hours for anyone to even ask us for money! And it was some time after that before we went into triage and got a room. Well... we got a piece, of a very large room, that was completely walled in by sheets. Do they think those sheets are magically germ-proof and sound-proof? (Someone should probably fill them in at some point)
With what must be my super-human ability to hear through hospital sheet walls, I found out that the guy to the left had been in a car wreck, and then I heard that the family on the right (mom, dad, little girl) had been in a wreck too, and you guessed it, it was the same wreck! I don't know what happened or who was at fault, but I was thinking our stay might have been more interesting if they had been next to each other, tee, hee! The sad part was that it was the wedding day of the family on the right. (So much for patient confidentiality, but who wants that in an ER anyway, right?)
As it turns out, Sweety's episode was not at all serious. Thanks again to God. It was classic breath-holding, something that baby's do in response to extreme stress and/or pain. (I'd never heard of this, but now it seems like everyone I know has a child or nephew or pet that does/did it) Their little brains get overloaded and start loosing track of all that they're supposed to be doing.
And while it was absolutely horrifying to watch, the good news is its apparently completely harmless. They always begin breathing again within a few minutes, and there are no documented cases of lasting brain injury or anything like that. It's supposed to wear off by age two-ish when the brain is mature enough to realize that breathing acctually has to be a priority, regardless of what else is going on.
And so ends my adventure with Sweety. We're more grateful than ever to have him and his darling brother in our lives. And you should hear the message on my phone, from Ben, while he was stuck at home, going a little crazy waiting for info, and contemplating a lightning fast drive to Az. The love, the care, and desire to do anything of use, dripping out of his voice pushes me near tears each time I replay it. He usually plays the comforter, the rock to my freak-out, but hearing vulnerability from him in that moment, somehow shows the depth of his love for our little boy. I have the most amazing husband. He'd do anything for us. Thanks Ben.
Man this is a long post! I'm sorry I got a little carried away, but I so enjoy writing to you! Thanks for giving me a minute... or twelve!
Wednesday, August 13, 2008
Friday's Fun for Smarty
Sunday, August 3, 2008
Tag, I'm It
4 Things I love to do over and over:
1. run away. Running clears my head and re-sets me for motherhood.
2. family bike rides. We live close to a beautiful river-side trail. It's so fun to watch the river and the trees and animals change with the seasons.
3. take my kids to the park. They love swinging, sliding, hanging out, and running around. They also get a kick out of watching other people, their dogs, and the inevitable bread-stealing seagulls. It's a great way to pass an afternoon.
4. visit Treehouse Children's Museum in Ogden, Utah. It's amazing. I highly recommend it. Yes, as a former employee I may be prejudiced, but check it out anyway; it's worth it.
4 People who call/text/email me regularly:
1. my moms, who are my best girlfriends.
2. my sisters-in-law (including Amy). I have the coolest in the world.
3. my brothers. They have always looked out for me.
4. my college roommates and friends from high school. Thanks for keeping in touch y'all.
4 Favorite Foods:
1. Ben's mashed potatoes served with roast. They're absurdly creamy, buttery, and lump-free. He makes the best in the world; no kidding.
2. Whatever my mom-in-law is serving. She's a genius with food.
3. Pork barbacoa from Cafe Rio. (No explanation necessary)
4. Most importantly, pretty much anything I didn't have to cook!
4 Places I'd Rather Be:
1. the Flake Ranch in Aripine, Arizona. A place that is more "home" to me than the home I grew up in.
2. the mountains. (anytime, anywhere) After a month or so of city life, it's crucial to my happiness to 'get outa Dodge.'
3. the 1000 Acre Lodge in North Slamon, Idaho. A quiet little B&B we discovered on our honeymoon.
4. The dream house Ben and I designed together and hope to build some day.
4 Movies I'd Watch Over and Over:
1. Secondhand Lions. Who knew Michael Cane could play a hillbilly?!!
2. The DaVinci Code. Great book + plus great director & actors = fantastic movie.
3. Hairspray. I giggle just thinking about it. Beautifully done.
4. Anything with a score by my hero, John Williams. He picks movies that are remarkable to start with, and his brilliance makes them epic.
4 Musicians I love to listen to:
1. Chris Ledoux. The biographer of Western America.
2. U2. They're unique and yet the widest varieties of people find validation in their music.
3. Kenneth Cope. The man is a rock, but his sensitivity is prevalent.
4. And good 'ole Michael Buble. King of crooners.
4 Times of the year I look forward to:
1. Halloween. This holiday belongs to children. It's so fun to watch even the shy kids' personalities come out when their all dressed up.
2. Spring. I get the worst cabin fever. I love to watch the world wake up again. The rebirth of nature rejuvenates my spirit.
3. The 4th of July. One of the best, and most important birthday parties of the year.
4. Christmastime. We all do.
4 People I'm tagging:
1. Candace Laughead
2. Sarah Hodson
3. Bryant Reeder
4. Allison Duffy



